Living with Endometriosis – Welcome to my blog
Welcome to my blog
Following a diagnosis of stage IV Endometriosis in 2009 after 19 years of pain, horrendous periods, countless trips to the GP, being passed between consultants, 7 miscarriages, fertility tests and nearly losing everything that meant something to me. I finally faced the ultimate sacrifice; loosing my womanhood.
In March 2011 I underwent I was prepared to have a TAH-BSO or in full a Total abdominal hysterectomy-bilateral salpingo-oophorectomy, having also been preped for a possible bowel resection. I didn’t need a stoma or a colostomy bag, for which I had been prepared. To the right of this post you will see a link ‘Recent posts to this site’ they go back right to before the operation.
Some blogs are me at my rawest when there has been no hiding from the emotional and physical loss. I have tried to be as honest and open as possible. A living record of what it has been like for me throughout this whole experience.
The idea for this blog came from the fact that I had begun communicating with other ladies who have endometriosis who like me were struggling to find a single source that could easily answer their questions. You will find that there are lots of websites with information on about Endometriosis and what treatment you may or may not be offered. When I knew I was having a hysterectomy and possible bowel resection I embarked on a mission to read as much as I could about what I was about to go through , what was missing was a honest account of what another woman has experienced. My hysterectomy & bowel resect was on March 1st 2011, I started writing an online blog 4 days before.
So much of what I was reading about having a hysterectomy was accompanied by doom and gloom – yet when I spoke to others who have experienced an early hysterectomy either because of cancer, endo or other horrid medical issues most said it was the best thing they have ever done.
I will post here frequently to give others an honest realistic account of what my endo journey and my recovery from major surgery as a way of helping others who may experience similar and likewise if you have any questions please send them in via email, if I can I will answer them on the blog as soon as I can. Since the blogs launch I have spoken with over 20 ladies who have had questions or just needed to blub with someone who understood how lonely this place is.